Huntington's Disservice is a triad of service disorders:
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Families face these forms of denial:
- Denial in insurance coverage.
- Denial in nursing home admissions.
- Denial of benefits, including Social Security Disability.
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As HD progresses in a citizen, the American human service system loses interest:
- In addressing serious problem behaviors.
- In the issues of caring for citizens in the more advanced years of Huntington's Disease.
- In cases of families in extremis despairing to find care.
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Misperceptions among healthcare and social service professionals are common:
- "His misbehavior is willful, premeditated and spiteful."
- "He could control it if he wanted to!"
- "He's lazy and not interested in much."
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This is a work in progress! Please send me examples, comments, encouragement or discouragement! E-mail me here.
30,000 Americans have Huntington's Disease.
How does the healthcare system in the richest country in the history of this planet, with a democratic government and blessed with technological resources beyond our imagination respond to their 30,000 citizens who have Huntington's Disease?
With...
Huntington's Disservice.
